Unusual Medical Disorders

BDDToday’s episode, “Trapped Inside Your House” featured women who were physically and emotionally trapped inside their own homes due to unusual medical disorders. Learn more about their disorders and websites that offer help below.

Obesity is not a simple condition of eating too much. It is now recognized that obesity is a serious, chronic disease. No human condition — not race, religion, gender or ethnicity — compares to obesity in prevalence and prejudice, mortality and morbidity, sickness and stigma.
www.obesity.org

Trimethyaminuria, also known as Fish Odor Syndrome, Fish Malodor Syndrome and Stale Fish Syndrome, is a metabolic disorder in which an individual is not able to break down trimethylamine, the compound that gives fish their fishy odor, into smaller compounds. Consequently, trimethylamine accumulates in the body and is then released in the person's sweat, urine and breath, giving off a strong fishy odor.
www.genome.gov

If you think you suffer from Trimethyaminuria, the Human BioMolecular Research Institute offers testing for this disorder.
www.hbri.org

Body Dysmorphic Disorder (BDD) is a severe condition that involves a preoccupation with a perceived defect in appearance. Individuals with BDD experience excessive shame, anxiety, and often depression about their appearance. BDD suffers often seek dermatologic or cosmetic surgical procedures and frequently use or avoid mirrors. Much of their self-worth is related to how they feel about their appearance.
www.bddclinic.com

If you or anyone you know suffers from any of the conditions mentioned in “Trapped Inside Your House” or another serious issue not discussed, share your story on the blogs.

Comments

for those TMAU sufferrers, i think i have tmau too, i came across a site that activated charcoal and copper chlorophyllin can moderate tmau production, some have 85% success rate. lets try it, and live a normal life my brothers and sisters. we suffered for too long...God bless us!!

Did Olymfia the lady with the server holitosis get helped? I want to know because I am in her shoe. But Tyra why don't you ask for doctors help on the air. please reply.

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My heart goes out to all of you who are suffering. I can't imagine going through what some of you are going through, but through my research into holistic health, although I am a novice, I would suggest looking into some holistic remedies, or have someone who cares about you do it for you. I can't judge, but I do know that conventional medicine does not aim to cure diseases but only "treat" them to make money so you have to stay on the meds for the rest of your life. Look for natural alternatives. Also, a positive mindset never hurt. I know some of the things you all are going through are very challenging. Keep your head up.

God Bless

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Nice bog you have here. I pretty much lurk the internet when I'm bored and read all I can about the organic lifestyle, but I really liked you view on things. I'll bookmark the site and subscribe to the feed!

There's a TMAU group in facebook! Please join

Tyra,
This is Gina Guerre. Wanting to talk about RSD again. I am also writing back to Kerri as I just now saw her post to me. Kerri, I will keep looking back for you to write. The reason I am back is just as a reminder for you to PLEASE hear MY voice, when I say "RSD/CRPS needs to HAVE a voice, and be heard by everyone, as NO one is immune from it. Not even you, or your loved ones./Users/patrickguerre/Pictures/iPhoto Library/Modified/2008/Roll 942/Photo 309.jpg
I don't know if you got this picture I am trying to send you with this message. If you don't receive it, please let me know, as it is a picture you and the rest of the world needs to see. It is a picture of what RSD/CRPS pain really looks like.
Would YOU please be a HERO for myself, and all of my brothers and sisters with this disease? Children and adults a like. It is not just the ones with this disease that suffer, our families suffer too. Won't you help us make the suffering stop?
I have been on PBS to talk about this deplorable disease, and would go on TV again in a heart beat if it meant we could get the word out to the world. We need a cure just like other diseases, we are just not talked about, and publicized like it should be. Like MS, or Breast cancer etc.

Thanks for you time again,
Gina Guerre

DearTyra, I am 38 year old male from Alabama.I have a strong body odor and bad breath.The problem is the doctors can not treat the problems.I have spent alot of dollars on doctor visits,but no cure.I need help my life is falling apart.

I am 38 year old male that never been tested for tmau .I have had body odor for 25 years.I have reduced my intake of choline and didnot see a change.I need help.

I have excessive sweating armpits and it all started two years ago. As the time passed, the sweating has gotten worse and worse. It didn't matter if it was hot or cold. Sweat will literally drip out of my armpit. If im bent over with a cut-off shirt on, the floor will have a small puddle over where I stand. I have to bundle up wads of paper towel and shove them up my sleeve. If I'm lucky they will last for an hour and it feels like a drenched wet rag. I'm not sure what to do. I have heard many diffrent solutions, but my family dosen't take me seriously when I say I have a problem.

I would like more information on trimethyaminuria (fish odor syndrome) please and what kind of medicine that can get rid of it please

40 doxycycline

40 doxycycline

ATTENTION! ATTENTION! For those who have halitosis! We have a group called breathelp4u2.com its an online community for those members that suffers from halitosis. We can talk about our experiences, embarrasments and share all knowledges that might cure our halitosis. Here is my email; mich_mash01@yahoo.com

my name is cheryl i live with a horrible body odor. i cant leave the house, i have tmau,my dream is to one day have a job, i have never worked in my life, i would love to work but i smell so bad i can go apply so i stay in my house all day long. i am suicidal and lonely, can someone reach out to me please, 916-344-5849

TYRA,

I TOO SUFFER FROM TMAU. I TRIED EVERTHING. I HAD 3 MAJOR SURGERIES (ETS,SKOOG PROCEDERE X's 2) RECENTLY FINDING OUT THAT THEY WEREN'T NEEDED. THEY COMPLETELY CUT OUT MY ARMPITS AND MADE MY SITUATION FROM A 7 TO A 40, BECAUSE NOW I SWEAT OVER 82% OF MY BODY. I'VE BEEN BATTLING THIS FOR 7 YEARS. I'VE NEVER GIVEN UP. I'VE BEEN EVERYWHERE, SEEN TONS OF DOCTORS. I HAVE ALL MY MEDICAL RECORDS. PLEASE IF THERE'S ANY DOCTORS OR ANYONE THAT KNOWS ABOUT ANY STUDIES GOING ON..I'D BE MORE THAN WILLING TO TAKE PART!! IM SICK OF EXISTING. I WANT TO START LIVING.I'VE BEEN A HERMIT FOR 7 YEARS. I KNOW THAT THIS IS NOT WHAT LIFE'S ABOUT. I'M A PRETTY (SMART) FEMALE. IT HAS TO GET BETTER. I DON'T KNOW WHAT ELSE TO DO, I CAN'T KEEP A JOB BECAUSE OF THIS CONDITION. IM STRUGGLING TO PAY MY BILLS AND I HAVE NO SUPPORT.

TYRA PLEASE GIVE MY INFORMATION TO THE LADIES THAT ARE SUFFERING FROM THIS TERRIBLE ILLNESS (TMAU) AND PLEASE GIVE IT TO GARY THE GUY WHO POSTED THE OFFER >>>

I watched your show about “Being trapped in your house”. I want to say that you are a very caring and companionate person unlike many others in this world. These ladies and anyone that have similar problems are beautiful people. You had talked about them not being able to hold a job or find work. This posting is to help offer a solution to that problem. There is an opportunity that I can offer, that will allow anybody nationwide that is willing to work and learn a simple system to be very successful. They can work from the home, or wherever they are comfortable

Posted by: Gary | February 16, 2007 10:02 AM

I NEED A WAY TO MAKE A LIVING..IM AT MY WITS END..I DONT HAVE SUPPORT OR ANYONE TO DEPEND ON. SOMEONE PLEASE IF YOU KNOW OF ANY JOBS THAT I COULD DO AT HOME PLEASE CONTACT ME

DEANNANYC69@YAHOO.COM

I'M AN EASY LEARNER AND I TYPE 74 WPM

PLEASE TYRA THANKS YOU'RE TRULY HEAVEN SENT!! GOD BLESS US ALL!!

TYRA,

I TOO SUFFER FROM TMAU. I TRIED EVERTHING. I HAD 3 MAJOR SURGERIES (ETS,SKOOG PROCEDERE X's 2) RECENTLY FINDING OUT THAT THEY WEREN'T NEEDED. THEY COMPLETELY CUT OUT MY ARMPITS AND MADE MY SITUATION FROM A 7 TO A 40, BECAUSE NOW I SWEAT OVER 82% OF MY BODY. I'VE BEEN BATTLING THIS FOR 7 YEARS. I'VE NEVER GIVEN UP. I'VE BEEN EVERYWHERE, SEEN TONS OF DOCTORS. I HAVE ALL MY MEDICAL RECORDS. PLEASE IF THERE'S ANY DOCTORS OR ANYONE THAT KNOWS ABOUT ANY STUDIES GOING ON..I'D BE MORE THAN WILLING TO TAKE PART!! IM SICK OF EXISTING. I WANT TO START LIVING.I'VE BEEN A HERMIT FOR 7 YEARS. I KNOW THAT THIS IS NOT WHAT LIFE'S ABOUT. I'M A PRETTY (SMART) FEMALE. IT HAS TO GET BETTER. I DON'T KNOW WHAT ELSE TO DO, I CAN'T KEEP A JOB BECAUSE OF THIS CONDITION. IM STRUGGLING TO PAY MY BILLS AND I HAVE NO SUPPORT.

TYRA PLEASE GIVE MY INFORMATION TO THE LADIES THAT ARE SUFFERING FROM THIS TERRIBLE ILLNESS (TMAU) AND PLEASE GIVE IT TO GARY THE GUY WHO POSTED THE OFFER >>>

I watched your show about “Being trapped in your house”. I want to say that you are a very caring and companionate person unlike many others in this world. These ladies and anyone that have similar problems are beautiful people. You had talked about them not being able to hold a job or find work. This posting is to help offer a solution to that problem. There is an opportunity that I can offer, that will allow anybody nationwide that is willing to work and learn a simple system to be very successful. They can work from the home, or wherever they are comfortable

Posted by: Gary | February 16, 2007 10:02 AM

I NEED A WAY TO MAKE A LIVING..IM AT MY WITS END..SOMEONE PLEASE IF YOU KNOW OF ANY JOBS THAT I COULD DO AT HOME PLEASE CONTACT ME THRU TYRA.

PLEASE TYRA THANKS YOU'RE TRULY HEAVEN SENT!! GOD BLESS US ALL!!

How are you Tyra!

I'm Archangela, from Tanzania-East Africa.I've been watching your shows which i found to be inspirational, interesting and sad at times. Today's show for instance,(Hope am right, as at times your shows are from the previous months down here!)on "Trapped Inside yor House", really touched me. It made me realize how much some people live with excruciating pain,saddness, loneliness and fear!

Sometimes it becomes difficult to help those who are suffering, but what i normally do when in such situations, i PRAY for them, for i do believe in the power of prayers.Our God is an awesome God, if we crown him as our captain, he'll therefore take charge and make our lives better.

May God bless you and your crew for changing people's lives, and may you keep that spirit up, helping out whenever possible.

Love and prayers, Archangela.

Hi tyra,
IS a pleasure having people like you with a heart to help some people under stress to be at least relief from their stress.
now i want you to get me connected to olfenfia the lady with halitosis please it can be on phone or on email for i have a word for her personally for her for she is a special personality to me i wish to get her for a wife for i believe in God and i am a servant of God in my country He has perform so many wonders under my ministration so i know that God will deliver her so please let this for now be a secret for us until i talk to her person thanks EVANGELIST OBEN MBIKANG ERNEST ;phone; 23777275426

I don't watch the tyra show much but when this episode was aired I overheard people talking about it the next day at work, especially when I heard something about her using bleach. I then began to wonder if those chemicals had began to take effect on her health and wondered how can anyone survive that.

But not to worry for all those who were also wondering what happened to her and if she's still alive or not, I recently came across a web page one night while doing some research of halitosis and I stumbled across this web page of her and I must say it's quite interesting! Here's the link to it:

Olenfia.instantecom.net

I'm Anna, 16 and my mom suffers from Chronic Fatigue. I understand not many women have it but it does exist. It's pretty rare and so rare that there's no medicine for it. Some days she tells me she feels like she's been hit by a truck and i can't count the times i've heard her moans just getting in and out of the car. It even keeps her up at night. It absolutely breaks my heart and i find myself crying for her countlessly. She can't even work or do what she wants to do. I was also wondering if anyone else reading this has it.

 

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